Community Capacity Building

Community and Regional Systems Capacity Building

In some regions where we’ve worked the longest and have extensive stakeholder networks, we are expanding from our site-specific work by collaborating with organizations that have a larger community, regional or national reach. Below are examples of these types of projects underway in India.

Collaborating with India's National Board of Examinations (NBE)
Children's HeartLink is collaborating with India's National Board of Examinations to enhance India’s pediatric cardiology fellowship training programs through the use of online education modules. The objective of the project is to bring pediatric cardiology teaching standards up to the same level across all teaching centers in the country, so that the knowledge base for pediatric cardiologists will be expanded and, ultimately, the screening, referral and treatment system for children with heart disease will be improved. See more detail about this project here.

Fostering the development of Parent Advocacy and Support Groups
In conjunction with our partners, Amrita Institute for Medical Sciences in Kochi, India, and Narayana Hrudayalaya Hospital in Bangalore, Children's HeartLink is supporting the developing of a parent support group for families of children with congenital heart defects (CHD). Read more about this project on The Pulse.

Collaboration with the Indian Academy of Pediatrics (IAP)
This collaboration will enhance the skills of practicing pediatricians in early detection of pediatric heart disease. Increasing awareness of the problem among pediatricians through continuing medical education programs, seminars, and symposia is likely to be most helpful in early diagnosis and timely referral of cases. The curriculum has been developed by pediatric cardiologists in India and members of the pediatric cardiology chapter of the IAP. The workshop training is provided by practicing pediatric cardiologists working in established pediatric heart programs, through face-to-face seminars with practicing pediatricians. We anticipate that as a result of this training more patients will be referred for treatment and higher demand for pediatric cardiac care will be created. Increased demand could be a valuable lever in health policy considerations about expanding the system of pediatric cardiac care across the country.
 

Other Program Partnerships

In addition to our partner site relationships, Children’s HeartLink builds and maintains partnerships with other key organizations promoting the prevention, diagnosis and treatment of pediatric heart disease.
 
Examples include a Chagas disease prevention project based in Ecuador and large teaching hospitals specializing in pediatric cardiac care in China and India.

The Need.

 

Congenital heart disease is the most common birth defect, affecting one in 100 children. Only one in 10 children has access to care.

Passing on Lifesaving Knowledge

We work in concert with our dedicated medical volunteers, as well as governments and other organizations, to provide training, mentoring and capacity building opportunities designed to meet the unique needs of each partner hospital.